Wednesday, 20 October 2010

More Bad News!

Went to St James's for my bloods doing today and Dr Smith explained my bone marrow result. The result wasn't good news but i had sort of been expecting it. This didn't make it any easier to hear but at least i was prepared for it so didn't cry in front of Dr Smith lol. The Chronic Myeloid Leukaemia is now in the accelerated stage of the disease which means the transplant cannot be delayed anymore as my leukaemia is no longer stable as it has been for 2 years. What does all this mean you are probably thinking? I will now explain in the easiest way possible and i appologise for spelling mistakes but a bit upset now i am talking about it.

CMLhas 3 stages of the disease. I was diagnosed in the 'chronic' stage which usually stays stable for about 4 years before it changes. During the 'chronic' stage blood counts are steady and you can live a normal life. When it to moves the accelerated stage the bone marrow will start producing lots of immature cells and you will have 15% Basophils present in your BMB. I have 14% Basophils present so from that and the amount of immature blood cells in my blood that is why Dr Smith can see that the change to the accelerated phase has taken place. The night sweats and bone pain i have being experiencing is all related to the 'accelerated' phase. My white count has gone up to 58 since the other week which shows that the drugs are having a  lesser effect on the CML and the counts are now harder to control and will fluctuate more due to the leukaemia becoming more active. The transformation can last 6-24 months before going in to the blast phase. In the blast phase you have about 6 months to live. CML can also go from the'chronic' phase straight to the 'blast phase'.
I am hopeful that i will not experience the blast phase as i hope the donor passes the medical and i can get back on the road to success. I am going now so i can watch Jaws. A nice happy film to cheer me up lol

5 comments:

  1. My heart feels for you Lauren, keep trusting and have peace!

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  2. ditto. what else can i say?

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  3. Hi Lauren. Just wanted to say we are praying for you and are so impressed by what you are writing and how bravely you are coping with this. Keep up the good work and take care! Lots of love Beverly and Duncan.
    PS LOVE the hat!!!

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  4. hi Lauren so sorry your going though all this, hopefully they can get you straight ASAP. Thinking of you Lisa

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  5. Hi Lauren, We think of you and you are in our prayers each and every day. You are so brave. We love you. Anita and Tim xx

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