Was having a great time on holiday. Went Pony trekking twice and then had a ride on a grey horse called smartie at the place i was staying. It didn't feel like 5 years since i had being on a horse and i loved it. I want to try and do it more as long as i don't over do it as i can barely walk now due to the stiffness and aches.
Right then now for the gritty nitty side of stuff. The Bone Marrow Transplant has being postponed again. The donor passed the medical but can only donate on a Monday or Tuesday. This means that there would be a 3 day gap between my last dose of radiotherapy and me recieving the donor cells. This cannot be done as it is not possible to leave a 3 day gap and they can't do radiotherapy on a weekend due to provisions. There is going to be a meeting on Monday to discuss my options. I think that they will decide to use the original donor as she will be out of the malaria danger zone in November so that would mean a 2 month delay til December. Or i choose not to have radiotherapy and hope that the chemo on its own will be enough to destroy the cancer cells.
I really don't want to have to wait til December i cannot think of anything more depressing than spending christmas and my birthday in a hopsital bed. I think it is worst this time as the donor is fine it is the fact that they wont do radiotherapy on a weekend. Do i have to die in the mean time?
Lauren, we are so sorry that this has happened. It is very frustrating for all of us, but this is nothing to what you must be feeling. All we can do is keep trusting and praying for a solution, one that will be the best for you!
ReplyDeleteSorry to hear this news Lauren.
ReplyDeleteMay God provide for all your needs and keep you in his hand.
Hi Lauren, your strength is an inspiration to me, and to others. I am from Sydney, Aus, 25 years old and living with CML. Your fight gives hope and strength to me. I feel your anguish and your fear, and I hope for the best possible outcome for you. Keep strong. Jessica.
ReplyDeleteThank you for the comments. Jessica are you on facebook? add me if you are i am under as dizzy lizzy. Would be good to stay in touch with someone a similar age.
ReplyDelete