Had a rite laugh at ma Grandma Lillian's today, everything she says has me in stiches. She is coming to my church service on the 17th October so i hope she behaves herself lol. She rang to find out how long i was going to be as she had gone to the shop for some milk on her zimmer frame and had left her bag at home. When me and Elaine arrived she was stood waiting on the balcony for us so we went in with her and she had milk in the fridge all along. I will let her off though as she does have a bit of dementia and i may do the same when i am older .
After a nice long catch up with her we went to see Degas and Monet (my cousin's) and i played them a recording of my radio interview, which they were very impressed with. We smoked loads of ciggies before i went back to my Auntie Elaine's, where i am now snuggled up in bed having a think about tomorrow.
I have wrote a list of questions that i am going to ask Dr Smith or Dr Cook depending on which one i see. I am going to ask about what would be the down side to not having as much or no radiotherapy at all, if i don't have it then solves the issue with the transplant with the 2nd donor(and i would not be infertile either).
I want to know if i could use the 1st donor before she is out of the malria free incubation period.
Lastly i want to know about the new drug 'ponatinib' which is being trailed at Hammersmith in January for my type of bone marrow mutation. if the transplant hasn't taken place by then would it be worth trailing the drug to see if i have a response. This would mean i would not need a transplant anymore and would just take a tablet everyday rest of my life.
I am hoping i sleep better tonight as there is no Evie to karate kick me and i have taken my sleeping tablet. Will update tomorrow, hopefully with some good news!
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