Hospital went ok yesterday, still had to wait 2 hours even though i had my bloods done in advance as i was told i would have to wait less then. My white count had doubled to 16 so my doseof hydroxycarbamide has been increased by 500mg. I had a chat with Karen as she was around when i got to there. Karen explained that the original donor is going to be used. This is a lady from the UK (not America like i have stated in previous posts). This means the transplant will take place December at the earliest as we have got to wait for the all clear on her malaria tests etc. Karen said that i am very strong and that it's a shame that i don't even realise how well i am coping with everything. I have no confidence so i have no believe in myself and i am very hard on myself all the time. I don't see myself as strong and coping well with everything so i find it hard to believe people when they tell me this lol.
Dr Smith was great as usual lol. He answered my questions for me and was very reassuring and i think hearing his opinion helped me make up my mind on a few things. He explained that if i didn't have radiotherapy then more chemo is used. This is then more dangerous for your liver and the cancer might not be totally wiped out. Dr Smith said that from his point of view he didn't see any risks to my health by the transplant being postponed until Decmeber or Januray. If the recent bone marrow biopsy showed any signs of the cancer getting worst then obviously the transplant wouldn't be able to wait and a different plan would be used.
I will go back in 2 weeks for my bloods doing and probably have a catch up with Karen. I am also going to the cml support group on the 18th of Ocotber and it is meant to be the biggest one yet so it hsould be a good night. I have spent all day in bed as not feeling very well, probably because of Monday to be honest. I think i am getting used to the fact that the transplant is not going to be until December/January as well now i have had a bit of time ot come to terms with it. I am feeling confident about my CML staying in the chronic phase until the transplant and i am just going to try and occupy my mind until i get another date as that is all i can do for now.
Thanks for keeping us up-to-date with all the progress, Lauren. There is no doubt that you are coping very well with this illness. You are amazing! Keep doing what you are doing! We will continue to give you all the support we can.
ReplyDeleteI to feel you are coping well, especially with
ReplyDeleteall the set-backs. good stuff.
Hi lauren just like to echo marianne's comment. remembering you in my prayers.
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