My name is Lauren Hards and i am 20 years old. I am currently living in Newmarket which is in Suffolk. I have a rare type of leukaemia called CHRONIC MYELOID LEUKAEMIA. I was diagnosed with the disease in September 2008, however I recently found out that I am going to have a Bone Marrow Transplant at the end of 2010. I am doing this blog so people can follow me through the transplant and to try and get more people to donate bone marrow.
Wednesday, 22 December 2010
What a week...
Well i thought i was going to be having myself a merry little xmas at home with Tom at the beginning of the week but what a difference a day makes. I had a temp Mon night after i was told i may be kicked out for good at the end of the week. This was providing my sickness was controlled and i was taking all my meds by mouth. However, Tues i found out the CMV was back and meant business as this time it had risen from 6,000 to 42,000! I spent the day been a moody cow as i am sure Tom will agree as the nicest thing i said to him was that i would head butt him lol. I think i have overdosed on Shameless. Today i have a glisten back in my eye and do actually feel a bit brighter considering my counts have dropped again. My neuts have dropped from 0.87 to 0.55 which is a pain cos i cant go anywhere til they are above 1 grrrr. I have got back in the xmas spirit after having presents brought in from my Dad and Aunty Hannah. I was worried when Tom had more than me last week but i have the most now so that has cheered me up. Had a go on the wii for the frst time since coming in and i really enjoyed it. I am looking forward to my xmas dinner as it is a real turkey and not micro meals. I dont think i have ever been so excited about a meal but i guess that is cos we take things for granted. I have recieved lots of lovely cards so thankyou everyone that has sent them, they have found there way ok. The dietician is very pleased with how much i am managing to eat and it seems to have helped my tummy recover too. It is a good thing i put 5 stone on before i came in cos i would weigh 6 stone now if i hadnt have. I am going to focus on been out for my birthday so i can celerbrate with some shloer and a nice soak in the bath.
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Sorry you had a disappointment this week Lauren. It must be awful to have something good dangled in front of you only to have it snatched away again. You are obviously improving, or they wouldn't have considered letting you out, just a little bit longer! Keep strong love xxx
ReplyDeleteIt is a pity about the set back, but it does look as though you are on the mend. You still have that sense humour. You sound a bit violent, talking about head butting Tom. A moody cow? Nooooo...We think you are doing well under the circumstance. Try and have a lovely Christmas, and lets trust Santa brings you plenty of good things.xxx
ReplyDeleteHi Lauren
ReplyDeleteSorry you did not make it out for Xmas but with your spirit I am sure you will be home for your birthday then we can go internet shopping for some presents.
Give my love to Tom and hope we will all see you both soon.
Happy Christmas
Love Grandad David XXX
Hi just been through all your posts - Just remember there is light at the end of the tunnel - even if you can't see it !!! My dad is in remission from aml and is coming in next week to st.James for his bmt. Your blog has provided a real insight into the process!!!
ReplyDeleteYour stay at the hospital will hopefully soon seem like a distant memory!!1