Wednesday, 8 December 2010
"My mouth is on fire"
I had no idea that TBI and chemo would cause such a sore mouth. Imagine your whole mouth is full of ulcers and your tounge is full of blisters and your lips have green pus coming out of them. Sounds nice eh? Well that is my mouth at the moment. Hmmm that must be why Tom hasn't been kissing me lol. I had a nose bleed yesterday so had a top up of platelets a little while ago. I had some not very good news yesterday as one of my blood results showed that i have the CMV virus. CMV is a common virus that infects most people at some time during their lives but rarely causes obvious illness. For me though it is a big pain in the bum as it means the bone marrow will not start working until it has gone. This means i will have a sore mouth and low counts for longer and will be in hospital longer : ( I cant say how long it will take to go because everyone is different but they have caught it early on which is a good start. It can also come back a lot until my immune system is working properly. I have been very very upset since yesterday but it keeps me strong and sane when i come on here and read the comments pages.
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So sorry to hear about the virus Lauren! Don't lose your positive spirit though.....it is such powerful tool in your recovery. There's a lot of love around you and loads of people routing for you which you so deserve.
ReplyDeleteHope your day is easier. Love, Margaret x
Thank you Lizzy for sharing your journey with me. I am praying for a speedy recovery for you.
ReplyDeleteOh Lauren! We are praying and thinking of you so much. I don't know whether you've heard but, via Face book people in Cape Town are being encouraged to donate bone marrow! You are an inspiration. Keep strong through the pain and we pray you will be more than comforted. Lots of love Beverly and Duncan XXXXXXX
ReplyDeleteStick with it Lauren, we saw you on the telly again, you are an inspiration. Myself and son are going to give blood (and register on BBMR) tonight down to you.I`m working on everyone else!!
ReplyDeleteChin up. Judith (Rob Castlehouse`s old work mate)
Sorry to hear about your sore mouth and virus, keep thinking postive thoughts and stay strong and you'll get through it.
ReplyDeleteI get blood blisters in my mouth as a side effect of Glivec and that is enough of a pain!
I hope things start to look up soon x
Jackie x
Just read Curryhouse's message Lauren. Capetown!! You are inspiring people all over the world already. Just think how many people you will be helping...and all while you're feeling rubbish. You are one very brave girl. Margaret xx
ReplyDeleteHi Lauren, i'm so glad you are finding peoples comments helpful. Who knows what good will come out of this. You are an inspiration to many people. Going through so much pain, and yet, smiling and having a sense of humour. It is frustrating on top of the other problems. Lets trust this clears up soon. xxx
ReplyDeleteLauren, you can do this honey. Keep positive and you will get there. I think about how you are doing all the time and check the blog daily for updates. You are my inspiration. Michelle (Pesty) xx
ReplyDeleteHi Lauren, good to hear you had a hand and foot massage today! That must have been comforting. I was at the hairdresser's today and she was asking about you, saw you on the box and is very impressed by the way you are handling this. While I was telling her all about it, the other customers were really interested, and at least one said she would check on your blog. The word is spreading, just as you intended! God Bless you, keep strong, lots of prayer is surrounding you through this! xxx
ReplyDeleteDon't always have time to comment, but I read the blog every day without fail! Keep your chin up. you're doing brilliant x
ReplyDeleteHi Lauren, I hope you don't mind a total randomer commenting on your blog...! My boyfriend is 24 and has ALL, he was diagnosed in June and has a bone marrow transplant on 12th November (currently on day +28). He came home last Monday (day +24) which was amazing and earlier than we expected. He had 2 days of chemo and 8 doses of TBI so suffered from Mucositus etc like you. Days 7-21 were pretty tough for him (first mucositus then delayed vomiting and the runs), but he got through it and although tired and obviously at risk of infection he is bouncing back now!
ReplyDeleteSorry for the ramble, I just wanted you to know of someone who is a couple of weeks ahead of you in this process, the end is in sight! Stay positive, it sounds like you are doing great :-)
xxx