My name is Lauren Hards and i am 20 years old. I am currently living in Newmarket which is in Suffolk. I have a rare type of leukaemia called CHRONIC MYELOID LEUKAEMIA. I was diagnosed with the disease in September 2008, however I recently found out that I am going to have a Bone Marrow Transplant at the end of 2010. I am doing this blog so people can follow me through the transplant and to try and get more people to donate bone marrow.
Sunday, 5 December 2010
Scared to go to sleep...
Had the most horrible dreams last night and couldn't wake up for ages either. I have never had such vivid dreams which i could feel the pain in and not wake up straight away. The doctor and me both think it is because i had some cyclizine(anti sickness) at midnight and it hs reacted with the morphine. I am hoping that this is the case cos i had to get the nurse to wake me up every half hour this morning cos i was so terrified. I have never had cylizine at that time before and it made me drop straight to sleep so please please no nasty dreams tonight. I also had a bit of a skin reaction earlier which is probs the cyclosporin(anti rejection drug) as it is common to get a rash with it. It aint owt serious just makes my skin burn. My mouth is at its worst as i cant eat or drink and is rated 16/18 on the score chart. I have been having all my meds and food down my naso tube. My feed had to be stopped tonight because the mucusitos is in my tummy now which meant it felt like i had someone sitting on my stomach. I will give it another go tomorrow. All i can do is try my best and the nurses cant believe how well i am doing.My hair has come out at the front cos there is some bald patches which feel very smooth but the top of my head is sore and red. I can't wait til i can eat and manage to drink something fizzy without it stinging. Just waiting for the nurse to come cos machine is bing bonging now.
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We can't believe how well you are doing either Lauren. You are obviously suffering, but yet you always manage to joke about it. Keep on being strong love, you WILL get through this!xxx
ReplyDeleteWe really feel for you Lauren. I don't think i could stand what you are going through. So, i am really impressed at how you are coping. A lot of people are asking after you. They want the best for you. Keep your chin up. Love you.xx
ReplyDeleteHi Lauren - Just wanted to let you know we are thinking of you and do hope that things soon get more comfortable for you. It sounds as if you are doing brilliantly - hang in there. Love Wendy & Richard
ReplyDeleteHey Lauren,
ReplyDeleteJust to let you know im thinking of you. I hope things improve and you get back on your feet soon. Stay positive
David