Friday, 10 September 2010

Just spoke to Karen the transplant co-ordinater about a potential transplant date-29th October
















I have just spoke to Karen my transpalnt co-ordinater who i really admirer and appreciate everything that she does for me. I am not going to get my hopes up just yet but another donor has being selected. It is a male donor from the UK and he has being chosen over other potential donors as he has had no pregnancys which is something they look for when picking a donor, so being male this is obviously a dead cert lol. Karen is hoping to get the donor clearance by 5th of October so i am praying that this time the medical will be fine. The reason the other donor failed her medical is because she went on holiday earlier this year to a country that has malaria and she did not have any vaccinations or malaria tablets before she went. She cannot donate blood for 6 months as a result of this. Therefore, if she gave bone marrow the team wouldn't know if this could affect me. I am in a lucky situation though where there are other matches so the safest option is to use a different donor and i am lucky enough to have one to fall back on to, as there are so many people who die in my situation becasue there is no other donor to use!

Some dates then,
  • 4th of October is when i go to give my bone marrow biopsy (which i hope to film).
  • 12th of October is my radiotherapy test dose
  • 21st October is when i have my hickman line fitted and potentially when i am admitted to hospital for my 6 week stay in isolation.
  • 29th of October THE TRANSPLANT-this is when i recieve the cells from my donor.
I am now going to ring my local radio station to see if they are interested in my story and also ring up the newspaper and ask them if they will do a article for me. If you don't ask you don't get so worth a try i reckon.

8 comments:

  1. looking forward to the film should be informative.
    tell you what ill put some alarms on my phone just to remind me.

    ReplyDelete
  2. Hi Lauren, good to see things are on the move, let's trust everything goes to plan.
    I'm sure a lot of people will be interested in your story. Keep chin up. xx

    ReplyDelete
  3. Good Luck :)

    MY BIL directed me here, he has CML as well.

    ReplyDelete
  4. Hello Lauren,

    I'm also a CML sufferer. My body has recently rejected Imatinib after being on it for 18 months, so I am now on Dasatinib.

    I will be keeping an regular eye on you blog, especially as I might need to go through the same thing if no meds work.

    As I am always told, stay positive. PMA (Positve Mental Attitude) :). I am sure this helps you know :)

    All the best

    Darren

    ReplyDelete
  5. Hi Lauren.

    Still watching,,,well done.

    Frank..

    ReplyDelete
  6. thank you for your comments and Darren i am alos always told to be positive and it is hard but it is possible and i have finally started to adopt that kind of attitude and Frank i will now see you at the next meeting as my transplant is now after it so will good to see the clan before the transplant x x

    ReplyDelete
  7. 29th Oct Praying..

    ReplyDelete
  8. hey lauren not sure if its you from cml yorkshire i will keep an eye on your blog. I too have cml diagnosed december 2008 am now on dasatinib after failing imatinib. Anyway will track your blog Kev :-)

    ReplyDelete