Friday, 19 November 2010
On Look North tonight on BBC 1 between 6.30-7.00PM...
Well the title says it all... i am very excited to watch myself on tv after all the filming earlier on today. Penny Bustin and Nick the camera man were both lovely. I don't think the nurses enjoyed them being here as much as i did lol. I start my cocktails in the morning and i am very sad that it wont have the perks that cocktails usually have. It will have the after effects of too much alcohol though lol. I am to expect being sick, runny stools, mouth ulcers and loads of other nasty things. I am still in loads of pain with my hickman line but just discovered i can have morphine every 2 hours (not 6 hours like i thought). Just eaten all my tea and i am still hungry! Carrie my youth worker sorted me some internet out so i will be online throughout the transplant now whoop whoop! Gonna play on cooking mama now before my big debut on the tv lol.
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Just watched you on tv and I wanted to wish you all the luck in the world. izi xxxxx
ReplyDeleteHello Lizzie just seen you look north Just like to wish you look Our son was diagnosed with CML (that shitty disease)sorry for that love thats what we called it .7 yrs ago now 5yr post transplant he has just finished his masters at sheffield and has swam for gp transplant team in oz , Hope this gives you and your family hope for the future , never ever ever give up hope just do as the nurses says and suck plenty of ice lollies after your radio therapy , Yes it will be crap but you will get there
ReplyDeleteAll our love b&t
Hi Lizzie, just saw you on look north and just had write.I had a transplant under Dr Cook three and a bit years ago at St James' and you have the most amazing team looking after you. I was a similar age to you at the time and it was really hard and scary but it does get better, i promise! Stay positive and do everything the doc says, it's the only way! C xxx
ReplyDeleteHi Lizzy. I too have CML and am lucky enough to be on Dasatinib at the moment. I found this through CML support online. I wish you the best of luck and wanted to say how great it is that you are doing the blog. You are the first person I have heard of that has CML and is a similar age to me - I have just had my 23rd Birthday. I will be following your blog. Thank you, Clare
ReplyDeleteHi Lizzy
ReplyDeleteMy young son was diagnosed with Cml at the age of 10 and was initially treated with Glivec. He had a transplant two years after diagnosis in 2005 ( he also kept a blog) and has just celebrated his 18th birthday and is 5 years post transplant. Things will be tough, but you if you approach this with a positive attitude you will get through this.
Wishing you all the very best P
I saw you on Look North tonight too. I was very touched by the feature they did on you and wanted to wish you the best of luck. My son was diagnosed with CML in 2006 and he blogged about his battle too. There is a company who will design/jazz up your blog if you blog about an illness. They give you a nice "home" and did a stunning job of my son's blog where he loved to go and write. The program is called write from the heart and is run by www.adorigraphics.com. My son is 23 now and is 2 years post transplant. Keep your chin up , you can beat this. Hugs! Leanne & Simon
ReplyDeleteHi Lauren
ReplyDeleteI saw you on telly tonight and I have been following your blog. I want to wish you all the luck in the world. There are some very good positive comments above I hope they help you to keep your spirit up. Lots of love to you, Margaret x
Hi Lauren
ReplyDeleteits charlottes mum here rochelle, hope all goes well. back at hosptial everyday for the next 3 weeks. if you want anything bringing in just fb charlotte. take care xxxx