you got wires, goin in
you got wires, comin out of your skin
you got tears
making tracks
i got tears
that are scared of the facts
running down corridors
through automatic doors
got to get to you
got to see this through
i see hope is here in a plastic box
i've seen christmas lights reflect in your eyes
you got wires, goin in
you got wires, comin out of your skin
there's dry blood on your wrist
your dry blood on my fingertip
i see it in your eyes
i see it in your eyes
you'll be alright
ATHLETE-WIRES
I think these lyrics sum up what i am going through very well so i thought i would share it with you all.
I have a new accessorie attched to my body a NASO GASTRIC TUBE to go with my hickman line and syringe driver in my arm. I just hope i dont have to have a catheter at some point. The naso tube has being put in because at some point i will not be able to eat and drink due to the mucositus that has already started developing in my mouth and gut. It is one of the many effects of chemo and Total body irradiation. I am still managing to eat and drink fine at the moment even though it hurts a lot. I am not going to be lazy and use the tube if i don't need to. I have been put on those forti drinks which are the equivalent of a meal and they do not like me i feel sick for hours after having it so not there biggest fan. I am on chemo every 3 days til the 7th of december now which i was a bit shocked about cos i thought i had finished all the nasty treatments. Apparently because i have had total body irradiation it means that i am at higher risk of graft versus host disease so the chemo i have now is to try and stop that. At the moment it is hard to imagine been out of here anytime soon cos the treatments aint even finished yet and i am still waiting for all the side effects like hair loss and vomiting and the mucositus etc. For now though i will enjoy frankie boyle (even if it kills me to laugh) and my sweets yum yum
Oh, dear Lauren, it must feel like this will never end! But it will, and you will come out of this stronger and healthier than you can imagine. Keep strong, love you lots xxx
ReplyDeleteMost important part of those lyrics is the last line - "you'll be alright". Hang in there!
ReplyDeletethinking of you lauren.. your one BRAVE girl,keep strong your doing brill, lv sharon..xx
ReplyDeleteHi Lauren, certain parts of this blog, i didn't understand; but Marianne explained. It does sound awful. I do really feel for you. I know what its like to have catheters fitted and needles in different places. But to have tubes for feeding etc; no. I do think you will encourage others, by your sense of humour and really good attitude and off course your brilliant blog. We love you. xxx
ReplyDelete