Not sure what made me decide to write a new post after all this time and at a ridiculous hour!
I guess it is because I am feeling quite fed up at the moment and feel it may help to write my feelings down Incase it relates to other people on here.
After my bone marrow transplant I thought I would be free of pain and anxiety but sadly that has not been the case. People tell me how lucky I am to be alive which is very true but that doesn't mean I cannot be pissed off if I am feel unwell.
I have done lots of amazing things over the last 4 years and met lots of new amazing people, which I am so happy about. Especially my little dog Dolly who has been a part of my life since 2014. I cannot have children due to the radiotherapy I had to kill the leukaemia. However Dolly is my fur baby and helps me through the days that I struggle with the fact I will never have another life grow inside of me. As well as having to deal with that on a daily basis i am in pain all over my body and have had various scans which do not explain why it is I am in agony. My gp thinks it is fibromyalgia and after reading lots of articles and spelling to other people who have been diagnosed with it I am 99% I have it too. I have an appointment coming up soon for the pain clinic so will hopefully get some answers then. In the meantime I will try a few alternative treatments such as massage and acupuncture to try relieve some of the pain and hopefully relax me so I can sleep before 4 in the morning!
Well I will try and get some sleep now and have cuddles with Dolly to try and ease my fear of sleep as I have been suffering with night terrors this week I think due to all the medication.
Good night/ good morning ☺️
One brave lady Lauren you have told it has it is and I admire you for telling everyone how lucky you are to be alive but I admire you more for saying how fed up you are with the pain. Fibromyalgia is awful I no because I have it too and I haven't had a transplant I have had interferon and Gleevic and always had bone and join.pain so much so it got worse not better and its a.constant fight with the specialists sometimes making them listen and believe you. Stay positive hun and keep on fighting till you get answers for that pain
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