had some good news!

I no longer have hospital 3 times a week now that i have come off ambizone (anti-fungal drug) and ciclosporin (anti-rejection drug). This also means i will be having my line out very soon as i am only in hospital for clinic appointments now and not for iv drugs. This is a huge step forward now and feels as though i am getting nearer to all the transplant hell been over whoop whoop! Think i have caught a lergie as my throat is killing and i feel very sleepy. Spending a week down in suffolk tomorrow after i have had a makeover at the teenage ward. I still feel a bit insane but i am trying my best to fight through it and not give up on myself by just sleeping all the time etc.