My name is Lauren Hards and i am 20 years old. I am currently living in Newmarket which is in Suffolk. I have a rare type of leukaemia called CHRONIC MYELOID LEUKAEMIA. I was diagnosed with the disease in September 2008, however I recently found out that I am going to have a Bone Marrow Transplant at the end of 2010. I am doing this blog so people can follow me through the transplant and to try and get more people to donate bone marrow.
Saturday, 1 January 2011
Not going home...
Well i thought yesterday was bad but today was a lot worst. My liver function test was higher than usual yesterday so they didn't want to send me home until they got it sorted but i was allowed overnight leave. I perked up a bit and loved sleeping in a normal bed again and not waking up to a nurse taking my bloods and doing my blood pressure. I didn't make it til midnight last night but Tom keeps saying we were awake but i am not counting it as i was in bed trying to sleep lol. We got to hospital this morning for my bloods checking and then i was looking forward to returning home until tomorrow. Bam it all went wrong when i asked if my CMV result was back. It had gone up from 1,000 to 14,000 so i start iv treatment again tonight which is twice a day and as you may have guessed i now have to stay over night whilst i am on it. I was very stressed about staying over night because i find it very difficult to sleep in hospital but they are giving me some zopiclone thankfully so i am in a better mood now. I know i have done well really to get to where i am and the cmv happens to most transaplant patients so i am not alone. I think it jsut takes its toll on you mentally when your told your going home and then your back on iv drugs again. I would rather this hapen now though ,rather than have got discharged and then have to be readmitted etc. I cant complain too much though cos i am very lucky to be out of isolation and able to go home for the day etc.
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Sorry to hear you've another set-back Lauren. You are on the up, but it is awful to get your hopes up and then have them dashed again. Try to keep positive, that has got you so far, and your sense of humour!!!
ReplyDeleteHappy New Year to you and Tom
ReplyDeleteLove
Nick, Sue, Sarah and Aimee xx
Hi Lauren
ReplyDeleteHope you get some good news today ...you should soon be home and sleeping in your own bed!!
Compared to how you were a few weeks ago, you are really doing well.
Hope 2011 brings you renewed health and much happiness. You are an inspiration to so many people.
Love
Margaret x