Sorry i have not posted for a while...

As some of you will have seen on Look North this week i was finally let home after 9 weeks in hospital. It all happened so quickly on the tuesday evening. One minute i am hooked up to a drip stand having a magnesium transfusion the next i am preparing for Look North to arrive to film me leaving hospital. The CMV result had come back negative which meant they could finally send me home. I looked absolutely terrified but i promise i was excited too lol. When i did i get out that night i just slept as i'd had an exhausting day. My happiness of finally been let loose though was short lived. It started with me throwing up all day on Wednesday which meant i could not keep my tablets down. On Thusday i decided to ring the ward and they said i needed to come straight in. Thankfully there was a bed available(i will have been in every room on the ward by the end of it lol). The doctors are not sure why i am been sick but have put me on drugs to try and stop it. I haven't been sick since friday so i feel a bit better but i am still finding it hard taking tablets and eating cos my tummy is so sore. I didn't have a good night last night cos i spiked a temperature which means i am now on antibiotics and i am now in isolation til they get test results back to see if i have a tummy bug. It is a lot to take on when i should be at home getting back in to a routine again. Also the cmv is 1,000 so if it goes above 5,000 they will start treatment for that again. I have had a unlucky week and i am getting fed up of hospital now but the nurses keep me going with their sense of humour. I will hopefully have a happy feel good post one day lol.

Isolation...

What a week i have now gone from going home- to day release- to ISOLATION. I was only saying to Dr Cook yesterday that coping with isolation was not a prob for me cos at the time i was really ill but i said that i did not know how i would cope if i was in isolation now. I have been put in isolation to protect me whilst my neutraphils are low so i dont know how long it is for or owt cos still waiting to see the doctor. It is very hard not been able to wander in and out of my room as i please i gotta say mainly because i cant be nosey at what the nurses are up to lol. I am hoping it is just a temporay inconvineance to my weekend as i don't want my mood to worsten etc. I have got rid of facebook for the moment as i feel spending lots of time on a computer is not something i want to do anymore. I want to do more exciting things with my time now that i have a new life. I will be starting volunteer work as soon as i can mingle with people again lol. I have lost my identity the last couple of years but i will gradually get it back this year i hope! : )

Turned 21 since i last posted on here...

Had problems getting online for one reason and another so this is my first post in a while. Not that much to catch up on really apart from my b day at the weekend which didnt feel like a b day in my hospital room lol. I had hoped i wouldnt be sick but my tummy obv didnt care it was my b day so the day begun like all the rest. I have not been very well to be honest this week as i keep been sick and my stomach feels like someone has punched me in it and the pain doesnt go away. I had an ensoscopy this morning which just showed what we already knew but it didnt show anything worst at least. I was told i was going to be going home tomorrow...but then my cmv result came back as 1,000 so i begin treatment for that in the morning. I have been let out for the night tonight though so i am going to make the most of it as i will have been in hospital 2 months tomorrow which seems like forever. Thank you everyone for the birthday wishes and i will try and post on here as much as i can when the internet has been sorted in my internet room.

Not going home...

Well i thought yesterday was bad but today was a lot worst. My liver function test was higher than usual yesterday so they didn't want to send me home until they got it sorted but i was allowed overnight leave. I perked up a bit and loved sleeping in a normal bed again and not waking up to a nurse taking my bloods and doing my blood pressure. I didn't make it til midnight last night but Tom keeps saying we were awake but i am not counting it as i was in bed trying to sleep lol. We got to hospital this morning for my bloods checking and then i was looking forward to returning home until tomorrow. Bam it all went wrong when i asked if my CMV result was  back. It had gone up from 1,000 to 14,000 so i start iv treatment again  tonight which is twice a day and as you may have guessed i now have to stay over night whilst i am on it. I was very stressed about staying over night because i find it very difficult to sleep in hospital but they are giving me some zopiclone thankfully so i am in a better mood now. I know i have done well really to get to where i am and the cmv happens to most transaplant patients so i am not alone. I think it jsut takes its toll on you mentally when your told your going home and then your back on iv drugs again. I would rather this hapen now though ,rather than have got discharged and then have to be readmitted etc. I cant complain too much though cos i am very lucky to be out of isolation and able to go home for the day etc.