My name is Lauren Hards and i am 20 years old. I am currently living in Newmarket which is in Suffolk. I have a rare type of leukaemia called CHRONIC MYELOID LEUKAEMIA. I was diagnosed with the disease in September 2008, however I recently found out that I am going to have a Bone Marrow Transplant at the end of 2010. I am doing this blog so people can follow me through the transplant and to try and get more people to donate bone marrow.
Saturday, 14 May 2011
EBV Virus
The Epstein-barr virus is one of the most common human viruses. Most people have been infected with the virus at some point. It can cause a sore throat, swollen glands, swollen liver and spleen. If left untreated it can go on to become glandular fever. I curretnly have the EBV virus in my body and it has increased from 13,000 to 58,000 and there is a bit of worry that my liver is swollen. I haven't had any treatment yet as i havent presented the symptoms of glandular fever however i would rather not wait for me to get it either lol. I am booked in for a ct scan on wednesday to see how my liver and the rest of the body is and depending on the results from that and my blood results a decision will be made about treatment etc. I have a normal platelet and red cell count at the moment but my neutraphils have dropped so that is a bit of a worry but i am sure it is because of the virus. My line is going to stay in a bit longer incase i need treatment for the EBV virus. I am just watching Eurovision not through choice i would like to add but because it is one of Toms fav nites of the year lol. Apart from watching trash on telly i am looking for a job at the moment. My plan is to do some volunteer work and have September as my target to either start a course or apply for a job.
Saturday, 7 May 2011
A rumble in the jungle...
All has been quiet as far as my treatment goes. I have come off most of my drugs and there was talk of my Hickman line been removed. I am not in a hurry for it removing though as i have become quite fond of it lol. It will be very strange not having tubes hanging out of me like a robot anymore and getting a bath will be too easy when it has gone lol. I dont like the thought of them removing it as it must hurt as it will be embedded in to my body and they just tug at it to get it out. Anyway the peace was disturbed the other day when i recieved a call from my consultant to tell me i have a virus in my blood that causes glandular fever. I had my bloods repeated yesterday but wont have the results til monday. If the virus is still in my blood then i will have to go into hospital for iv treatment. It has to be given very slowly as a lot of people can have an allergic reaction to it. This is all great when it only takes 3 hours to get to hospital lol.
I have applied as a volunteer for the cat protection society this week as daytime tv is driving me insane so i would like to do something a bit more useful with my brain well what there is left of it lol. I am also interested in working with people with learning difficulties as i was training to be a learning disability nurse before i was diagnosed so i do have some experience. I am just watching total wipeout and i am ashamed to say i am enjoying it lol.
I have applied as a volunteer for the cat protection society this week as daytime tv is driving me insane so i would like to do something a bit more useful with my brain well what there is left of it lol. I am also interested in working with people with learning difficulties as i was training to be a learning disability nurse before i was diagnosed so i do have some experience. I am just watching total wipeout and i am ashamed to say i am enjoying it lol.
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