My name is Lauren Hards and i am 20 years old. I am currently living in Newmarket which is in Suffolk. I have a rare type of leukaemia called CHRONIC MYELOID LEUKAEMIA. I was diagnosed with the disease in September 2008, however I recently found out that I am going to have a Bone Marrow Transplant at the end of 2010. I am doing this blog so people can follow me through the transplant and to try and get more people to donate bone marrow.
Sunday, 14 November 2010
Had a nice relaxing weekend
The spa was amazing. The staff were really nice and i managed to relax for a few hours after my facial. Tom had a facial and a massage which he enjoyed. He is such a woman lol. I am moving into my new house this week and then moving into hospital for a short while. I am going to have so much to do this week and not enough time to do it all. I think i am going to avoid wilkinsons and asda online shopping after the stuff i have recieved this week is a bit different to what i ordered. I have a smashed up washing basket, a turquoise xmas tree instead of a pink one and a single duvet instead of a double one so not a lot wrong lol. I might not post on here much til wed or thurs as i am very busy this week but after thurs i will be posting everyday as long as i have internet in hospital. I have to provide my own internet so i am a bit stressed about what dongle to get etc but i think i have sorted everything else. I am dyeing my hair pink on wed teatime at my tea party so i will try and film that lol. I raised over £500 for Clic Sergeant so thankyou everyone that donated.
Friday, 12 November 2010
Away at a spa for a couple of nights
Having a lovely time at the hotel, looking forward to my facial at 1.30 and then there is a jazz band playing at the hotel tonight. I was saying to Tom the other day how i would love to go to a jazz bar before the transplant so i am made up. Tom has had a shave for his facial as it would have bin like sand paper for the poor woman's hands later lol. My only complaint about the place is the slowness of the internet and the quality of the breakfast this morning but your always going to find something wrong where ever you go i guess. It is just what i needed to relax though i just hope the facial is relaxing later on. I had some champagne last night and it made me discover how dodgy one of my ugg boots has gone. I am going to have to find a ugg subsitute today so i am no longer walking on my ankle lol.
I am on the BBC Radio Suffolk at 11.10AM so please listen if you can i will try and put a link up if i can.
I am on the BBC Radio Suffolk at 11.10AM so please listen if you can i will try and put a link up if i can.
Wednesday, 10 November 2010
Had the bestest news ever!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
The donor passed the medical which means the transplant will go ahead next week. I feel so so happy about this. However the radiotherapy test dose i had at teatime has made me really ill so i couldn't crack open the champers when i got home : ( But never mind it will have done my liver good lol. Just chilling in bed with a can of IRN BRU and a tin of choccies to celerbrate instead. I will go in for my BMT on the 18th of November and will be in for about 6 weeks. The radiotherapy will be twice a day for 3 days and then once a day for 2 days. It is gonna be horrific to be honest and i will most likely get caterats (however you spell it). I will have to have a very healthy lifestyle after the transplant so i don't have a heart attack or get lung disease and my IQ may be affected as well. Not a lot of bad points huh. I would be suprised if my IQ can get any worst lol. I also read that a risk when having the hickman line inserted is a punctered lung but they do a x ray a few hours after insertion to check lol. The plus of all this is a cancer free life though if it does work so i am willing to suffer for a bit if it means a nice new life for me. I am allowed to take my own music with me when i go to radiotherapy so hopefully that will distract me, whilst i am laid in my moulded bean bag in the fetal position hah crazy stuff but very clever. I am goign to try and get some sleep now so Goodnight all.
Monday, 8 November 2010
Had news but it isn't good or bad yet...
Just spoke to Leeds and basically it would seem that there is a problem with the donor. They couldn't tell me why what or anything because of confidentially. Something though has come up on the medical which is having to be queried for what ever reason and i will hopefully know in the morning whether the donor is being used or not. I feel devastated to be honest. I feel like someone has ripped all my organs out and stamped on them. The chances of a medical not passing are very small yet for me it has happened 3 times potentially. I just don't think i can be positive anymore. If this donor can't be used how long am i going to have to wait for another one? How long before my leukaemia is terminal? I wouldn't sleep tonight if it wasn't for sleeping tablets lol. Anyway i am still going to go out for a meal and i am still going to drink champagne as life is too short and i think i know that better than anyone. I can't wait for a life that isn't controlled by cancer but i can't help feel that it is never gonna happen now. I will try my best to be positive and laugh things off but it is blooming hard.
Sunday, 7 November 2010
Pink hair for Clic Sergeant!
I have decided that i am going to dye my hair pink to try and raise money for Clic Sergeant. I thought that it would be a good way to show my appreciation for everything that they have done. It will also give me a groovy hair style while i am in hospital lol. I have just ordered the hair dye now online so it should arrive before the BMT i hope. I dyed my hair earlier today and it has gone more ginger than blonde oops lol. I am going to bleach it tomorrow or make it lighter so that the pink will take. I can't believe wagner has got through wot a waste of my fiver lol. Can everyone please pray that i get good news about the donor tomorrow and please sponsor if you have a spare quid thank you(link is below) xx
http://www.justgiving.com/Lauren-Hards
Saturday, 6 November 2010
Off to a bonfire soon...
I am very excited to see the 2,000 pound firework display in about half hour. I am even more excited though about Monday. I will find out on Monday whether the donor has passed the medical so i can't wait for Monday to come around as i am hoping it is good news. I have just being adjusting to not been in hospital anymore. I miss not having to cook lol. If i recieve good news on Monday then my radiotherapy test dose will go ahead on tuesday night as they cannot give a test dose if the transplant is post poned as it is very dangerous. It is less than 2 weeks til transplant now so i need to get a wiggle on with moving my stuff in to my new home. I have ordered all the furniture and it will all arrive next week apart from the bed which will take over a month. This is rather annoying as it is the most important item really but at least i can kip on the sofa. I hope i get back from the bonfire in time for x factor as i look forward to it everyweek lol. I am feeling really excited about the transplant even though the treatments are going to be horrific. I am also s**t scared as i could die but i am focusing on the positives for once in my life lol. I am confident that i am going to kick the cancers butt! Gotta go now but will hopefully be typing good news on monday!!
Wednesday, 3 November 2010
Bored Bored Bored...
Had the ultrasound this morning and as suspected my spleen is a bit enlarged so that would suggest why i have pain in my tummy. I slept all night again and woke up just in time to get ready before my scan. Tom was waiting in by my bed when i woke up so i thought i was dreaming at first lol. I have played pool today and watched some dvds but i can't get rid of my boredom. I can't get rid of my sickness which is starting to get my nerves now as i keep having sicky burps lol. I am assuming that i am going to be let out tonight when they have got my tablets from pharmacy. I am getting the keys to my new house this week so will be living up north again after the transplant as need to be close to hospital afterwards. It will be very strange living on my own again. I will have to get one of those giant teddys or a goldfish or a goldfish for company lol. I will have the keys to the house on friday, so will have just under 2 weeks to move in. I will have to try and look at some furniture stores tomorrow before i go home. I think moving house is stressful enough without having my circumstances on top of it. I am so nervous about monday as that is when i will recieve good or bad news about the donor. If it is good news then i will l be having champagne celerbrate me thinks...
Monday, 1 November 2010
Finally had CT scan done...
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| MY NEW EARRINGS |
Incase you don't know what i am on about when i said CT scan it is a scan of my head to check that my eyes are ok as i have had a lot of pain in that area. I have no idea what CT means so i just call head scan instead.
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